Mithrin (mithrin) wrote in crohns_patients,
Mithrin
mithrin
crohns_patients

Hey

I always feel guilty because I post in here only when I feel like no one else would be able to get how I feel -in other words, the rare times when my Crohn's is acting up-.

Very stressed right now -I've had Crohn's for eight years so trust me when I say I know stress is bad-.

I have no urge to eat, I am literally buying food because I feel like maybe it would help -I know it is good to drink electrolytes. If you're not hungry eating empty carbohydrates won't make a difference-.



Normally, I contact my GI and he signs and I get my infusion. However, my GI is not affiliated with the GI at NYU's infusion center.So there is another GI who receives whatever note, signs, and then I get my infusion. The whole process, frankly, confuses me. But I am assured it 'works.' Well, no one bothered to tell me that their procedure changed about two weeks ago. And now, even though my GI signed OVER A WEEK AGO and faxed the forms giving his consent I have to go see the GI -not MY GI- at NYU's infusion center before I can get infused.

RANT:


The issue: HE IS ON VACATION AND NO ONE BOTHERED TO INFORM ME. I HAD TO CALL HIS OFFICE.

Yesterday I was just tired and ticked. Today I called their office to bitch because the forms were faxed and I was sick of the run around. Otherwise I wouldn't have found out he was on vacation.

So I called my GI and the head nurse said they changed their procedure at the infusion center and she is dealing with a backlog of patients -including me- waiting to get fixed. The head doctor of the practice I go to is really pissed about the whole thing. . .ECT.

The kicker: I also changed insurances. I am on Oxford's Liberty Plan which -frankly- blows. I had no choice in the matter, but I thought my GI would be on the plan -apparently HE IS ON Oxford's Freedom Plan-. So in the midst of this whole dilemma I need to get the infusion center to CONFIRM my new insurance in ADDITION to everything else -which they REFUSE to do until I get my approval from a GI I HAVE NEVER SEEN-.

END RANT:
It boggles my mind to be honest. How come I can get on insurance -I was on COBRA before- which will approve my Remicade. I have insurance and money to pay for the insurance. EVEN A DOCTORS APPROVAL. Yet I have to suffer and wait. What the heck is wrong with our system? I get it, I should have planned for this, but I am so damn busy I'm literally calling my new insurance for questions while I am walking to another job.

Help? Suggestions? Anything Please.
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